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Unfortunately
due to some staffing and sponsor issues we will not be able to hold
the BloodRun in 2008.
Look for us to
come back in 2009!
The BloodRun 5k and 1 mile run is held at the HIGHLAND HERITAGE PARK in Highland,
Utah. The event is a fun, healthy, and friendly event
catering to runners, walkers, and families who want a little exercise,
get a new t-shirt, and support a great cause. The BloodRun also
serves as a fundraiser for the Utah Hemophilia Foundation.
Together we as a community should share a common purpose -- empowering
individuals and families to lead healthier and more self-sufficient
lives.
CHECK OUT THE RESULTS
FROM 2007
CHECK OUT THE RESULTS
FROM 2006 |
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What are Bleeding Disorders?
Hemophilia is an inherited bleeding
disorder caused by a deficiency or defect of one of the proteins
necessary for blood to properly clot. These proteins are known as
clotting factors. Hemophilia affects one out of every 7,500
males. von Willebrand disease is another bleeding disorder that
affects as many as one in every 50 individuals - both men and women.
People with bleeding disorders do not bleed
faster than others: they bleed longer because their blood does not
clot properly. Symptoms include bleeding into joints and muscles which
over a period of time can lead to chronic pain, arthritis, deformity
and disability. In addition, bleeding occasionally occurs in the brain
and other vital organs which can be life threatening. There is
no cure for these chronic and sometimes debilitating bleeding
disorders.
Treatment
Treatment is aimed at replacing the
deficient clotting factor. This is done via infusions of concentrates
containing the needed factor. Many patients are on a home infusion
program whereby they self-infuse the clotting factor concentrate when
they bleed or prophylactically to prevent bleeding. This ensures
prompt treatment, and gives them greater independence.
The costs of treating severe hemophilia
are high, sometimes $60,000 to $200,000 per year or more. Prevention,
early recognition, and prompt treatment of bleeds can help keep these
costs down as well as improve overall quality of life.
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Utah Hemophilia Foundation
The Utah Hemophilia
Foundation, or UHF, is a private, 501(c)(3) non-profit organization
that was established in 1959. The UHF has grown into a large,
statewide organization that serves over 400 families throughout Utah.
A few of the many programs and initiatives we support are:
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ADVOCACY: People affected by
bleeding and clotting disorders are facing a variety of issues
today, including increasing threats to the ability to access high
quality care. These are challenging times for people in the
bleeding and clotting disorders community, but becoming educated and
working together, we can make a difference. Last year the UHF
was instrumental in getting a bill passed through Utah's legislature
to provide assistance to those who are facing catastrophic medical
expenses due to a bleeding disorder. |
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RESEARCH: On a national and
international level, research is ongoing to develop cures for
bleeding disorders. Realistically, they are years away from a
lasting cure. |
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FIRST STEPS:
First Step families are those with young children who have
been newly diagnosed with a bleeding disorder. They
gather at least twice a year to share stories, swap techniques
that work to stop bleeds, and in general, support each
other through friendship and a common desire for healthy and
safe children. |
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FAMILY FORUM:
The
annual UHF Family Forum brings families together from
all corners of the state for a weekend of learning and fun.
Families attend lectures from experts, participate in
interactive workshops, learn more about products and services
from vendors, and network with each other. |
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CAMP VALOR:
Each
year, kids with bleeding disorders, ages 8-13, gather at Camp
for a week of supervised swimming, archery, and other fun
activities. At camp, they expand their ideas of what
kids with bleeding disorders can do, learn to manage their
disorder, and connect with other kids just like
them. |
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CONTACT INFO: |
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Race Director
Mya Anderson
e-mail: mya (at)
bloodrun.org |
Utah Hemophilia Foundation
880 East 3375 South
Salt Lake City, UT 84106
phone: 801-484-0325
fax: 801-484-4177
www.hemophiliautah.org
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